Redes de apoyo social y padres de niños con trastornos del desarrollo. Diferencias estructurales y funcionales basadas en la tipología

  1. Mª Lourdes Álvarez Fernández 1
  1. 1 Universidad Internacional de La Rioja
    info

    Universidad Internacional de La Rioja

    Logroño, España

    ROR https://ror.org/029gnnp81

Journal:
Revista de Psicología y Educación

ISSN: 1699-9517

Year of publication: 2016

Volume: 11

Issue: 2

Pages: 7-24

Type: Article

DIALNET GOOGLE SCHOLAR lock_openOpen access editor

More publications in: Revista de Psicología y Educación

Abstract

The present descriptive study examines and compares the situation of the social support networks of 75 parents of children with developmental disorders (DD). An instrument was elaborated, the ERAS-DD (Álvarez y García, 2008); it evaluates the structural and functional dimensions of the construct. five groups were closely matched for DD typology: autism spectrum disorder, learning disabilities, intellectual disability, sensory deficiency and motor deficiency. There were significant differences between these groups in the structural and functional dimensions. The results suggest that parents of children with autism spectrum disorder were the group whose social network had been most affected and who needed the most support. These results are agree with those found in other studies in which it is confirmed that according to DD’s typology, the parental social support networks are more or less affected (Heiman & Berger, 2008).

Bibliographic References

  • Álvarez, L., & García, J. N. (2007a). Las redes de apoyo social en las dificultades del desarrollo. In J. N. García (Coord.), Dificultades del desarrollo: evaluación e intervención (pp. 311-320, cap. 27). Madrid: Pirámide.
  • Álvarez, L., & García, J. N. (2007b). La evaluación de las redes de apoyo social en las dificultades del desarrollo. In J. N. García (Coord.), Instrumentos y programas de intervención en las dificultades del desarrollo (cap. 35, CD-ROM). Madrid: Pirámide.
  • Álvarez, M. L., & García, J. N. (2008). Propiedades psicométricas del ERAS-DD. Instrumento de evaluación centrado en las dimensiones estructural y funcional de las redes de apoyo social de los padres y madres de personas que presentan dificultades en su desarrollo. Revista de Psicología INFAD, International Journal of Developmental and Educational Psychology. Nuevos Retos Familiares, Necesidades Educativas Especiales. 20 (1, 3), 91-98.
  • Álvarez, L., & García, J. N. (2009). Padres y dificultades del desarrollo. Revista de Psicología INFAD, International Journal of Developmental and Educational Psychology, 1(2), 521-528.
  • Álvarez, M. L., & García, J. N. (2014a). Instrumento de evaluación de las redes de apoyo social de padres con hijos que presentan dificultades del desarrollo: ERAS-DD. In J. N. García (Coord.), Instrumentos y programas de actuación en dificultades del desarrollo y del aprendizaje (cap. 9, CD-ROM). Madrid: Pirámide.
  • Álvarez, M. L., & García, J. N. (2014b). La intervención psicopedagógica en las dificultades del desarrollo a través de las redes de apoyo social. In J. N. García (Coord.), Prevención en dificultades del desarrollo y del aAprendizaje (cap. 25). Madrid: Pirámide.
  • Benn, K. M., & McColl, M. A. (2004). Parental coping following childhood acquired brain injury. Brain Injury, 18(3), 239-255.
  • Cohen, S., & Wills, T. A. (1985). Stress, social support, and buffering hypothesis. Psychological Bulletin, 98, 310-357.
  • Chronister, J. A., Johnson, E. K., & Berven, N. L. (2006). Measuring social support in rehabilitation. Disability and Rehabilitation, 28(2), 75-84.
  • Dean, A., & Tausing, M. (1986). Social support in epidemiological perspective. In N. Lin, A. Dean y W. M. Ensel (Eds.). Social support, life events, and depression (pp. 117-128). Orlando: Academic Press.
  • Dellve, L., Samuelsson, L., Tallborn, A., Fasth, A., & Hallberg, L. R. (2005). Stress and well-being among parents of children with rare diseases: a prospective intervention study. Journal of Advanced Nursing, 53(4), 392-402.
  • Fernández, J. F., Bravo, A., & López, M. (2010), Parents and peers as providers of support in adolescents´ social network: a developmental perspective. Journal of Community Psychology, 38(1), 16-27.
  • Franks, H. M., Cronan, T. A., & Oliver, K. (2004). Social support in women with fibromyalgia: is quality more important than quantity? Journal of Community Psychology, 32(4), 425-438.
  • Garaigordobil, M., & Pérez, J. I. (2007). Self-concept, self-esteem and psychopathological symptoms in persons with intellectual disability. The Spanish Journal of Psychology, 10(1), 141-150.
  • García, J. N. (1999). La intervención psicopedagógica a través de la creación y participación en redes de apoyo: conceptualización. In J. N. García (Coord.), Intervención psicopedagógica en los trastornos del desarrollo (pp. 65-79). Madrid: Pirámide.
  • Gaspar, T., Pais Ribeiro, J. L., Gaspar Matos, M., Leal, I., & Ferreira, A. (2009). Psychometric properties of a brief version of the escala de satisfação com o supporte social for children and adolescents. The Spanish Journal of Psychology, 12(1), 360-372.
  • Graff, J., Lauber, C., Nordt, C., Ruësch, P., Meyer, P. C., & Rössler, W. (2004). Patients´ and community perceived stigmatization toward mentally ill people and its consequences on quality of life. Journal of Nervous and Mental Disease, 192, 542-547.
  • Gray, D. (2003). Gender and coping. The parents of children with high functioning autism. Social Science & Medicine, 56, 631642.
  • Griffin, C., Guerin, S., Sharry, J., & Drumm, M. (2010). A multicentre controlled study of an early intervention parenting programme for young children with behavioural and developmental difficulties. International Journal of Clinical and Health Psichology, 10(2), 279-294.
  • Haslam, S. A., O´Brien, A., Jetten, J., Vormedal, K., & Penna, S. (2005). Taking the strain: social identity, social support, and the exprience of stress. British Journal of Social Psychology, 44, 335-370.
  • Heiman, T., & Berger, O. (2008). Parents of children with Asperger syndrome or with learning disabilities: Family environment and social support. Research in Developmental Disabilities, 29, 289-300.
  • House, J. S. (1981). Work stress and social support. Reading, MA: Addison-Wesley.
  • Hupcey, J. E. (1998). Clarifying the social support theory-research linkage. Journal of Advanced Nursing, 27(6), 1231-1241.
  • Janker, L., & Greeff, A. P. (2009). Resilience factors in families living with people with mental illnesses. Journal of Community Psychology, 37(7), 859-873.
  • Kyngäs, H. (2004). Support network of adolescents with chronic disease: Adolescents´ perspective. Nursing and Health Sciences, 6, 287-293.
  • Linn, N., Cook, K., & Burn, R. S. (Eds.).(2001). Social capital: Theory and research. Hawthorne, NY: Aldien de Gruyter.
  • Lipman, E., & Boyle, M. (2005). Social Support and education groups for single mothers: A randomized controlled trial of a community-based program. Canada´s Leading Medical Journal, 173(12), 1451-1456.
  • López, F., Carpintero, E., del Campo, A., Lázaro, S., & Encarnación, S. (2006). Bienestar personal y social: Un programa de promoción para adolescentes: Un concepto de ser humano. In J. N. García (Ed.), Dificultades del desarrollo: Aplicaciones de intervención (pp. 11-182).
  • López, I., Menéndez, S., Lorence, B., Jiménez, L., Hidalgo, M. V., & Sánchez, J. (2007). Evaluación del apoyo social mediante la escala ASSIS: descripción y resultados en una muestra de madres en situación de riesgo psicosocial. Intervención Psicosocial, 16(3), 323-337.
  • Lundeby, H., y Tøssebro, J. (2008). Family structure in norwegian families of children with disabilities. Journal of Applied Research in Intellectual Disabilities, 21(3), 246-256.
  • Magliano, L., Fiorillo, A., Malangone, C., De Rosa, C., & Maj, M. (2006). Family burden and social network vs. physical diseases: preliminary results from an Italian national study. Acta Psychiatrica Scandinavica, 113(429), 60-63.
  • Montero, I., & León, O. G. (2007). A guide for naming research studies in psychology. International Journal of Clinical and Health Psychology, 7, 847-862.
  • Okun, M. A., & Keith, V. M. (1998). Effects of positive and negative social exchanges with various sources on depressive symptoms in younger and older adults. Journal of Gerontology Series B: Pisychological Sciences and Social Sciences, 53(1), 4-20.
  • Patel, S. S., Peterson, R. A., & Kimmel, P. L. (2005). The impact of social support on end-stage renal disease. Seminars in Dialysis, 18(2), 98-102.
  • Quiles, Y., & Terol, M. C. (2009). Evaluación de las dimensiones del apoyo social en pacientes con trastornos de alimentación. The Spanish Journal of Psychology, 12(1), 226-235.
  • Ramos-Álvarez, M. M., Moreno-Fernández, M. M., Valdés-Conroy, B., & Catena, A. (2008). Criteria of the peer-review process for publication experimental and quasiexperimental research in Psychology: A guide for creating research papers. International Journal of Clinical and Health Psychology, 8, 751-764.
  • Sanders, A. M., High, W. M. Jr., Hannay, H. J., & Sherer, M. (1997). Predictors of psychological health in caregivers of patients with closed head injury. Brain Injury, 11, 235-249.
  • Sánchez Moreno, E. (2004). Collectivize social supports? Elements for reconsidering the social dimension in the study of social support. The Spanish Journal of Psychology, 7(2), 124-134.
  • Senol-Durak, E., & Ayvasik, H. B. (2010). Factors associated with posttraumatic growth among spouses of myocardial infarction patients. Journal of Health Psychology, 15, 85-95.
  • Siklos, S., & Kerns, K. A. (2006). Assessing need for social support in parents of children with autism and down syndrome. Journal of Autism and Developmental Disorders, 36, 921-933.
  • Stoneman, Z. (2007). Examining the Down syndrome advantage. Mothers and fathers of young children with disabilities. Journal of Intellectual Disability Research, 51(12), 1006-1007.
  • Tilden, V. P. (1985). Issues of conceptualization and measurement of social support in the construction of nursing theory. Research in Nursing and Health, 8, 199-206.
  • Warren, L. (2004). Supporting the siblings of young children with disabilities. British Journal of Special Education, (31)1, 41-49.
  • White, N., & Hastings, R. (2004). Social and professional support for parents of adolescents with severe intellectual disabilities.
Data source: Dialnet